Who we are
We are Thr Organization for Rare Disease Awareness (ORDA) in Jordan, the first organization of its kind in the Middle East and North Africa, established on September 29, 2024.
We work to support patients with rare diseases and their families, and to raise awareness among healthcare providers and in the community to ensure a better life and comprehensive care for them.
Meet Our Volunteer Team
Our association is driven by a passionate team of volunteers and professionals from diverse medical, social, and administrative backgrounds.
Together, they dedicate their time and expertise to raising awareness about rare diseases, supporting patients and their families, and promoting early diagnosis and prevention across Jordan.
We believe that volunteerism is the cornerstone of building a healthier, more compassionate, and well-informed society. Through collaboration and commitment, our team continues to make a meaningful difference in the lives of those affected by rare diseases.
